The People Living with HIV Stigma Index 2.0 is a tool to measure the extent of stigma and discrimination experienced by people living with HIV. More than 100 countries have implemented the Stigma Index.

Aotearoa New Zealand first implemented the Stigma Index between 2019–2021, led by a range of stakeholders across the HIV sector. Results from the study were used to influence policy for people living with HIV, providing a benchmark on how well we are doing as a country. It informed practice and interventions and supported empowerment for people, networks and communities.

We are now preparing to implement the next cycle of this project: the People Living with HIV Stigma Index 2026 (Tū Pakari). The project is currently in the planning phase, with recruitment for interviewers and then participants beginning soon.

This study is an initiative that has been developed by and for people living with HIV. It is intended that the process of carrying out the interviews and undertaking the study will be empowering for people, their networks and local communities. The 2026 study will again be led by people living with HIV, supported by allies, and grounded in the values and principles of the Tū Pakari Model of Practice.

We are recruiting participants for this study from all walks of life. Our goal is to be as representative as possible of the HIV communities living in Aotearoa New Zealand.

The initial 2019 study obtained ethical approval from the University of Otago Human Ethics Committee (Health) (H18/135). Ethics approval for the 2026 study is currently under review.

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